Gaining insight into the views of outpatients with Huntington’s disease regarding their future and the way they deal with their poor prognosis: a qualitative study

BACKGROUND: Huntington’s disease (HD) has a poor prognosis. Decision-making capacity and communication ability may become lost as the disease progresses. Therefore, HD patients are encouraged to engage in advance care planning (ACP). To improve ACP for HD patients, there is a need to better understa...

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Библиографические подробности
Опубликовано в: :BMC Palliat Care
Главные авторы: Ekkel, Marina R., Depla, Marja F. I. A., Verschuur, Els M. L., Veenhuizen, Ruth B., Hertogh, Cees M. P. M., Onwuteaka-Philipsen, Bregje D.
Формат: Artigo
Язык:Inglês
Опубликовано: BioMed Central 2021
Предметы:
Research Article
Online-ссылка:https://ncbi.nlm.nih.gov/pmc/articles/PMC7802313/
https://ncbi.nlm.nih.gov/pubmed/33435952
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s12904-020-00706-x
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