RarERN Path: a methodology towards the optimisation of patients’ care pathways in rare and complex diseases developed within the European Reference Networks

BACKGROUND: In 2017, the European Commission has launched the European Reference Networks (ERNs), virtual networks involving healthcare providers across Europe. The aim of the ERNs is to tackle complex and rare diseases and conditions that require highly specialized treatment and a concentration of...

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Библиографические подробности
Опубликовано в: :Orphanet J Rare Dis
Главные авторы: Rosaria, Talarico, Sara, Cannizzo, Valentina, Lorenzoni, Diana, Marinello, Ilaria, Palla, Salvatore, Pirri, Simone, Ticciati, Leopoldo, Trieste, Isotta, Triulzi, Enrique, Terol, Anna, Bucher, Giuseppe, Turchetti
Формат: Artigo
Язык:Inglês
Опубликовано: BioMed Central 2020
Предметы:
Research
Online-ссылка:https://ncbi.nlm.nih.gov/pmc/articles/PMC7734838/
https://ncbi.nlm.nih.gov/pubmed/33317578
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-020-01631-1
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