RarERN Path: a methodology towards the optimisation of patients’ care pathways in rare and complex diseases developed within the European Reference Networks

BACKGROUND: In 2017, the European Commission has launched the European Reference Networks (ERNs), virtual networks involving healthcare providers across Europe. The aim of the ERNs is to tackle complex and rare diseases and conditions that require highly specialized treatment and a concentration of...

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Enregistré dans:
Détails bibliographiques
Publié dans:Orphanet J Rare Dis
Auteurs principaux: Rosaria, Talarico, Sara, Cannizzo, Valentina, Lorenzoni, Diana, Marinello, Ilaria, Palla, Salvatore, Pirri, Simone, Ticciati, Leopoldo, Trieste, Isotta, Triulzi, Enrique, Terol, Anna, Bucher, Giuseppe, Turchetti
Format: Artigo
Langue:Inglês
Publié: BioMed Central 2020
Sujets:
Research
Accès en ligne:https://ncbi.nlm.nih.gov/pmc/articles/PMC7734838/
https://ncbi.nlm.nih.gov/pubmed/33317578
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-020-01631-1
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