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RarERN Path: a methodology towards the optimisation of patients’ care pathways in rare and complex diseases developed within the European Reference Networks

BACKGROUND: In 2017, the European Commission has launched the European Reference Networks (ERNs), virtual networks involving healthcare providers across Europe. The aim of the ERNs is to tackle complex and rare diseases and conditions that require highly specialized treatment and a concentration of...

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Dettagli Bibliografici
Pubblicato in:Orphanet J Rare Dis
Autori principali: Rosaria, Talarico, Sara, Cannizzo, Valentina, Lorenzoni, Diana, Marinello, Ilaria, Palla, Salvatore, Pirri, Simone, Ticciati, Leopoldo, Trieste, Isotta, Triulzi, Enrique, Terol, Anna, Bucher, Giuseppe, Turchetti
Natura: Artigo
Lingua:Inglês
Pubblicazione: BioMed Central 2020
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Accesso online:https://ncbi.nlm.nih.gov/pmc/articles/PMC7734838/
https://ncbi.nlm.nih.gov/pubmed/33317578
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-020-01631-1
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