RarERN Path: a methodology towards the optimisation of patients’ care pathways in rare and complex diseases developed within the European Reference Networks

BACKGROUND: In 2017, the European Commission has launched the European Reference Networks (ERNs), virtual networks involving healthcare providers across Europe. The aim of the ERNs is to tackle complex and rare diseases and conditions that require highly specialized treatment and a concentration of...

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Detalhes bibliográficos
Publicado no:Orphanet J Rare Dis
Main Authors: Rosaria, Talarico, Sara, Cannizzo, Valentina, Lorenzoni, Diana, Marinello, Ilaria, Palla, Salvatore, Pirri, Simone, Ticciati, Leopoldo, Trieste, Isotta, Triulzi, Enrique, Terol, Anna, Bucher, Giuseppe, Turchetti
Formato: Artigo
Idioma:Inglês
Publicado em: BioMed Central 2020
Assuntos:
Research
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC7734838/
https://ncbi.nlm.nih.gov/pubmed/33317578
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-020-01631-1
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