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Understanding symptoms in RYR1-Related Myopathies: A mixed-methods analysis based on participants’ experience
BACKGROUND: In rare diseases such as ryanodine receptor 1-related myopathies (RYR1-RM), Health-related Quality of Life (HRQoL) measures are critically important so clinicians and researchers can better understand what symptoms are most important to participants with the ultimate goal of finding tang...
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| Publicado en: | Patient |
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| Autores principales: | , , , , , , , |
| Formato: | Artigo |
| Lenguaje: | Inglês |
| Publicado: |
2020
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| Materias: | |
| Acceso en línea: | https://ncbi.nlm.nih.gov/pmc/articles/PMC7728827/ https://ncbi.nlm.nih.gov/pubmed/32329019 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s40271-020-00418-7 |
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