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Use and importance of different information sources among patients with rare diseases and their relatives over time: a qualitative study
BACKGROUND: Finding reliable information on one of more than 7000 rare diseases is a major challenge for those affected. Since rare diseases are defined only by the prevalence criterion, a multitude of heterogeneous diseases are included. Common to all, however, are difficulties regarding informatio...
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| Publicado no: | BMC Public Health |
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| Main Authors: | , , , , , , |
| Formato: | Artigo |
| Idioma: | Inglês |
| Publicado em: |
BioMed Central
2020
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| Assuntos: | |
| Acesso em linha: | https://ncbi.nlm.nih.gov/pmc/articles/PMC7275578/ https://ncbi.nlm.nih.gov/pubmed/32503483 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s12889-020-08926-9 |
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