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Integrating patient perspectives in medical decision-making: a qualitative interview study examining potentials within the rare disease information exchange process in practice
BACKGROUND: Many European countries have recently implemented national rare disease plans. Although the network is strengthening, especially on the macro and meso levels, patients still go a long way through healthcare systems, with many health professionals involved and scarce evidence to gather. S...
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| Publié dans: | BMC Med Inform Decis Mak |
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| Auteurs principaux: | , , , , , |
| Format: | Artigo |
| Langue: | Inglês |
| Publié: |
BioMed Central
2019
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| Sujets: | |
| Accès en ligne: | https://ncbi.nlm.nih.gov/pmc/articles/PMC6751820/ https://ncbi.nlm.nih.gov/pubmed/31533712 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s12911-019-0911-z |
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