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Education and information needs for physicians about rare diseases in Spain

BACKGROUND: Rare diseases are a priority objective for public health systems. Given its complexity, late and misdiagnoses occur very often which causes mental and physical burden for patients and family. This would be caused, in part, for unprepared clinicians in this field. The aim of this study wa...

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Bibliografiske detaljer
Udgivet i:Orphanet J Rare Dis
Main Authors: Ramalle-Gómara, Enrique, Domínguez-Garrido, Elena, Gómez-Eguílaz, María, Marzo-Sola, María Eugenia, Ramón-Trapero, José Luis, Gil-de-Gómez, Josefa
Format: Artigo
Sprog:Inglês
Udgivet: BioMed Central 2020
Fag:
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC6969468/
https://ncbi.nlm.nih.gov/pubmed/31952528
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-019-1285-0
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