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Education and information needs for physicians about rare diseases in Spain

BACKGROUND: Rare diseases are a priority objective for public health systems. Given its complexity, late and misdiagnoses occur very often which causes mental and physical burden for patients and family. This would be caused, in part, for unprepared clinicians in this field. The aim of this study wa...

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Detalhes bibliográficos
Publicado no:Orphanet J Rare Dis
Main Authors: Ramalle-Gómara, Enrique, Domínguez-Garrido, Elena, Gómez-Eguílaz, María, Marzo-Sola, María Eugenia, Ramón-Trapero, José Luis, Gil-de-Gómez, Josefa
Formato: Artigo
Idioma:Inglês
Publicado em: BioMed Central 2020
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC6969468/
https://ncbi.nlm.nih.gov/pubmed/31952528
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-019-1285-0
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