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Education and information needs for physicians about rare diseases in Spain

BACKGROUND: Rare diseases are a priority objective for public health systems. Given its complexity, late and misdiagnoses occur very often which causes mental and physical burden for patients and family. This would be caused, in part, for unprepared clinicians in this field. The aim of this study wa...

תיאור מלא

שמור ב:
מידע ביבליוגרפי
הוצא לאור ב:Orphanet J Rare Dis
Main Authors: Ramalle-Gómara, Enrique, Domínguez-Garrido, Elena, Gómez-Eguílaz, María, Marzo-Sola, María Eugenia, Ramón-Trapero, José Luis, Gil-de-Gómez, Josefa
פורמט: Artigo
שפה:Inglês
יצא לאור: BioMed Central 2020
נושאים:
גישה מקוונת:https://ncbi.nlm.nih.gov/pmc/articles/PMC6969468/
https://ncbi.nlm.nih.gov/pubmed/31952528
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-019-1285-0
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