Education and information needs for physicians about rare diseases in Spain

BACKGROUND: Rare diseases are a priority objective for public health systems. Given its complexity, late and misdiagnoses occur very often which causes mental and physical burden for patients and family. This would be caused, in part, for unprepared clinicians in this field. The aim of this study wa...

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Detaylı Bibliyografya
Yayımlandı:Orphanet J Rare Dis
Asıl Yazarlar: Ramalle-Gómara, Enrique, Domínguez-Garrido, Elena, Gómez-Eguílaz, María, Marzo-Sola, María Eugenia, Ramón-Trapero, José Luis, Gil-de-Gómez, Josefa
Materyal Türü: Artigo
Dil:Inglês
Baskı/Yayın Bilgisi: BioMed Central 2020
Konular:
Research
Online Erişim:https://ncbi.nlm.nih.gov/pmc/articles/PMC6969468/
https://ncbi.nlm.nih.gov/pubmed/31952528
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-019-1285-0
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