Self-efficacy and self-management strategies in acute intermittent porphyria

BACKGROUND: Acute intermittent porphyria (AIP) is an inherited metabolic disease with low clinical penetrance caused by mutations in the hydroxymethylbilane (HMBS) gene. Although most patients experience little or no symptoms, serious attacks may include excruciating pain, severe electrolyte disturb...

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Bibliografiske detaljer
Udgivet i:BMC Health Serv Res
Main Authors: Hammersland, Marte H., Aarsand, Aasne K., Sandberg, Sverre, Andersen, Janice
Format: Artigo
Sprog:Inglês
Udgivet: BioMed Central 2019
Fag:
Research Article
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC6607542/
https://ncbi.nlm.nih.gov/pubmed/31269991
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s12913-019-4285-9
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