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Self-efficacy and self-management strategies in acute intermittent porphyria

BACKGROUND: Acute intermittent porphyria (AIP) is an inherited metabolic disease with low clinical penetrance caused by mutations in the hydroxymethylbilane (HMBS) gene. Although most patients experience little or no symptoms, serious attacks may include excruciating pain, severe electrolyte disturb...

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Detalhes bibliográficos
Publicado no:BMC Health Serv Res
Main Authors: Hammersland, Marte H., Aarsand, Aasne K., Sandberg, Sverre, Andersen, Janice
Formato: Artigo
Idioma:Inglês
Publicado em: BioMed Central 2019
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Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC6607542/
https://ncbi.nlm.nih.gov/pubmed/31269991
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s12913-019-4285-9
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