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Psychosocial Aspects of Predictive Genetic Testing for Acute Intermittent Porphyria in Norwegian Minors

Objective: The Norwegian Porphyria Centre routinely offers genetic counselling and predictive genetic testing in families diagnosed with porphyria. The aim of this study was to investigate the subjective experiences of adolescents and young adults who were genetically tested for acute intermittent p...

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Main Authors: Andersen, Janice, Sandberg, Sverre, Raaheim, Maalfrid, Gjengedal, Eva
格式: Artigo
語言:Inglês
出版: Springer Berlin Heidelberg 2011
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在線閱讀:https://ncbi.nlm.nih.gov/pmc/articles/PMC3509828/
https://ncbi.nlm.nih.gov/pubmed/23430820
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/8904_2011_8
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