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Psychosocial Aspects of Predictive Genetic Testing for Acute Intermittent Porphyria in Norwegian Minors

Objective: The Norwegian Porphyria Centre routinely offers genetic counselling and predictive genetic testing in families diagnosed with porphyria. The aim of this study was to investigate the subjective experiences of adolescents and young adults who were genetically tested for acute intermittent p...

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Detalhes bibliográficos
Main Authors: Andersen, Janice, Sandberg, Sverre, Raaheim, Maalfrid, Gjengedal, Eva
Formato: Artigo
Idioma:Inglês
Publicado em: Springer Berlin Heidelberg 2011
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC3509828/
https://ncbi.nlm.nih.gov/pubmed/23430820
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/8904_2011_8
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