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Using a stated preference discrete choice experiment to assess societal value from the perspective of patients with rare diseases in Italy

BACKGROUND: Decision makers have huge problems when attempting to attribute social value to the improvements achieved by new drugs, especially when considering the use of orphan drugs for rare diseases. We present the results of a pilot study aimed to investigate patient preferences regarding public...

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Pubblicato in:Orphanet J Rare Dis
Autori principali: López-Bastida, Julio, Ramos-Goñi, Juan Manuel, Aranda-Reneo, Isaac, Taruscio, Domenica, Magrelli, Armando, Kanavos, Panos
Natura: Artigo
Lingua:Inglês
Pubblicazione: BioMed Central 2019
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Accesso online:https://ncbi.nlm.nih.gov/pmc/articles/PMC6595697/
https://ncbi.nlm.nih.gov/pubmed/31242905
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-019-1126-1
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