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Using a stated preference discrete choice experiment to assess societal value from the perspective of patients with rare diseases in Italy

BACKGROUND: Decision makers have huge problems when attempting to attribute social value to the improvements achieved by new drugs, especially when considering the use of orphan drugs for rare diseases. We present the results of a pilot study aimed to investigate patient preferences regarding public...

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Podrobná bibliografie
Vydáno v:Orphanet J Rare Dis
Hlavní autoři: López-Bastida, Julio, Ramos-Goñi, Juan Manuel, Aranda-Reneo, Isaac, Taruscio, Domenica, Magrelli, Armando, Kanavos, Panos
Médium: Artigo
Jazyk:Inglês
Vydáno: BioMed Central 2019
Témata:
On-line přístup:https://ncbi.nlm.nih.gov/pmc/articles/PMC6595697/
https://ncbi.nlm.nih.gov/pubmed/31242905
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-019-1126-1
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