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Using a stated preference discrete choice experiment to assess societal value from the perspective of patients with rare diseases in Italy

BACKGROUND: Decision makers have huge problems when attempting to attribute social value to the improvements achieved by new drugs, especially when considering the use of orphan drugs for rare diseases. We present the results of a pilot study aimed to investigate patient preferences regarding public...

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Опубликовано в: :Orphanet J Rare Dis
Главные авторы: López-Bastida, Julio, Ramos-Goñi, Juan Manuel, Aranda-Reneo, Isaac, Taruscio, Domenica, Magrelli, Armando, Kanavos, Panos
Формат: Artigo
Язык:Inglês
Опубликовано: BioMed Central 2019
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Online-ссылка:https://ncbi.nlm.nih.gov/pmc/articles/PMC6595697/
https://ncbi.nlm.nih.gov/pubmed/31242905
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-019-1126-1
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