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Using a stated preference discrete choice experiment to assess societal value from the perspective of patients with rare diseases in Italy

BACKGROUND: Decision makers have huge problems when attempting to attribute social value to the improvements achieved by new drugs, especially when considering the use of orphan drugs for rare diseases. We present the results of a pilot study aimed to investigate patient preferences regarding public...

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Detalhes bibliográficos
Publicado no:Orphanet J Rare Dis
Main Authors: López-Bastida, Julio, Ramos-Goñi, Juan Manuel, Aranda-Reneo, Isaac, Taruscio, Domenica, Magrelli, Armando, Kanavos, Panos
Formato: Artigo
Idioma:Inglês
Publicado em: BioMed Central 2019
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC6595697/
https://ncbi.nlm.nih.gov/pubmed/31242905
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-019-1126-1
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