Psychosocial recommendations for the care of children and adults with epidermolysis bullosa and their family: evidence based guidelines

Epidermolysis Bullosa (EB) is a group of rare genetic disorders resulting in skin fragility and other symptoms. Commissioned by DEBRA International and funded by DEBRA Norway, this evidence-bases guideline provides recommendations to optimise psychosocial wellbeing in EB. An international multidisci...

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Spremljeno u:
Bibliografski detalji
Izdano u:Orphanet J Rare Dis
Glavni autori: Martin, K., Geuens, S., Asche, J. K., Bodan, R., Browne, F., Downe, A., García García, N., Jaega, G., Kennedy, B., Mauritz, P. J., Pérez, F., Soon, K., Zmazek, V., Mayre-Chilton, K. M.
Format: Artigo
Jezik:Inglês
Izdano: BioMed Central 2019
Teme:
Review
Online pristup:https://ncbi.nlm.nih.gov/pmc/articles/PMC6560722/
https://ncbi.nlm.nih.gov/pubmed/31186066
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-019-1086-5
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