Psychosocial recommendations for the care of children and adults with epidermolysis bullosa and their family: evidence based guidelines

Epidermolysis Bullosa (EB) is a group of rare genetic disorders resulting in skin fragility and other symptoms. Commissioned by DEBRA International and funded by DEBRA Norway, this evidence-bases guideline provides recommendations to optimise psychosocial wellbeing in EB. An international multidisci...

Descripció completa

Guardat en:
Dades bibliogràfiques
Publicat a:Orphanet J Rare Dis
Autors principals: Martin, K., Geuens, S., Asche, J. K., Bodan, R., Browne, F., Downe, A., García García, N., Jaega, G., Kennedy, B., Mauritz, P. J., Pérez, F., Soon, K., Zmazek, V., Mayre-Chilton, K. M.
Format: Artigo
Idioma:Inglês
Publicat: BioMed Central 2019
Matèries:
Review
Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC6560722/
https://ncbi.nlm.nih.gov/pubmed/31186066
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-019-1086-5
Etiquetes: Afegir etiqueta
Sense etiquetes, Sigues el primer a etiquetar aquest registre!

Ítems similars