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Psychosocial recommendations for the care of children and adults with epidermolysis bullosa and their family: evidence based guidelines
Epidermolysis Bullosa (EB) is a group of rare genetic disorders resulting in skin fragility and other symptoms. Commissioned by DEBRA International and funded by DEBRA Norway, this evidence-bases guideline provides recommendations to optimise psychosocial wellbeing in EB. An international multidisci...
Zapisane w:
| Wydane w: | Orphanet J Rare Dis |
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| Główni autorzy: | , , , , , , , , , , , , , |
| Format: | Artigo |
| Język: | Inglês |
| Wydane: |
BioMed Central
2019
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| Hasła przedmiotowe: | |
| Dostęp online: | https://ncbi.nlm.nih.gov/pmc/articles/PMC6560722/ https://ncbi.nlm.nih.gov/pubmed/31186066 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-019-1086-5 |
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