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The progress of, challenges faced by, and future of rare disease patient organizations in China
In addition to difficulties with treatment and expenses, patients with rare diseases in China greatly lack social support. In around 2000, Chinese patients with rare diseases and their families began to organize a series of charitable activities such as medical aid, public education, and policy advo...
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| 發表在: | Intractable Rare Dis Res |
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| Main Authors: | , , , , , , , , |
| 格式: | Artigo |
| 語言: | Inglês |
| 出版: |
International Research and Cooperation Association for Bio & Socio-Sciences Advancement
2019
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| 主題: | |
| 在線閱讀: | https://ncbi.nlm.nih.gov/pmc/articles/PMC6557240/ https://ncbi.nlm.nih.gov/pubmed/31218170 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.5582/irdr.2019.01069 |
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