The progress of, challenges faced by, and future of rare disease patient organizations in China

In addition to difficulties with treatment and expenses, patients with rare diseases in China greatly lack social support. In around 2000, Chinese patients with rare diseases and their families began to organize a series of charitable activities such as medical aid, public education, and policy advo...

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Bibliografische gegevens
Gepubliceerd in:Intractable Rare Dis Res
Hoofdauteurs: Huang, Rufang, Wei, Yunshu, Hu, Jiahao, Kong, Fanxin, He, Jiangjiang, Yang, Yan, Tang, Mi, Jin, Chunlin, Kang, Qi
Formaat: Artigo
Taal:Inglês
Gepubliceerd in: International Research and Cooperation Association for Bio & Socio-Sciences Advancement 2019
Onderwerpen:
Communication
Online toegang:https://ncbi.nlm.nih.gov/pmc/articles/PMC6557240/
https://ncbi.nlm.nih.gov/pubmed/31218170
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.5582/irdr.2019.01069
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