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The progress of, challenges faced by, and future of rare disease patient organizations in China

In addition to difficulties with treatment and expenses, patients with rare diseases in China greatly lack social support. In around 2000, Chinese patients with rare diseases and their families began to organize a series of charitable activities such as medical aid, public education, and policy advo...

Disgrifiad llawn

Wedi'i Gadw mewn:
Manylion Llyfryddiaeth
Cyhoeddwyd yn:Intractable Rare Dis Res
Prif Awduron: Huang, Rufang, Wei, Yunshu, Hu, Jiahao, Kong, Fanxin, He, Jiangjiang, Yang, Yan, Tang, Mi, Jin, Chunlin, Kang, Qi
Fformat: Artigo
Iaith:Inglês
Cyhoeddwyd: International Research and Cooperation Association for Bio & Socio-Sciences Advancement 2019
Pynciau:
Mynediad Ar-lein:https://ncbi.nlm.nih.gov/pmc/articles/PMC6557240/
https://ncbi.nlm.nih.gov/pubmed/31218170
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.5582/irdr.2019.01069
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