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A novel metadata management model to capture consent for record linkage in longitudinal research studies

Background: Informed consent is an important feature of longitudinal research studies as it enables the linking of the baseline participant information with administrative data. The lack of standardized models to capture consent elements can lead to substantial challenges. A structured approach to c...

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Bibliografiske detaljer
Udgivet i:Inform Health Soc Care
Main Authors: McMahon, Christiana, Denaxas, Spiros
Format: Artigo
Sprog:Inglês
Udgivet: Taylor & Francis 2017
Fag:
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC6484449/
https://ncbi.nlm.nih.gov/pubmed/29106808
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1080/17538157.2017.1364251
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