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A novel metadata management model to capture consent for record linkage in longitudinal research studies

Background: Informed consent is an important feature of longitudinal research studies as it enables the linking of the baseline participant information with administrative data. The lack of standardized models to capture consent elements can lead to substantial challenges. A structured approach to c...

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Detalhes bibliográficos
Publicado no:Inform Health Soc Care
Main Authors: McMahon, Christiana, Denaxas, Spiros
Formato: Artigo
Idioma:Inglês
Publicado em: Taylor & Francis 2017
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC6484449/
https://ncbi.nlm.nih.gov/pubmed/29106808
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1080/17538157.2017.1364251
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