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A novel metadata management model to capture consent for record linkage in longitudinal research studies

Background: Informed consent is an important feature of longitudinal research studies as it enables the linking of the baseline participant information with administrative data. The lack of standardized models to capture consent elements can lead to substantial challenges. A structured approach to c...

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Vydáno v:Inform Health Soc Care
Hlavní autoři: McMahon, Christiana, Denaxas, Spiros
Médium: Artigo
Jazyk:Inglês
Vydáno: Taylor & Francis 2017
Témata:
On-line přístup:https://ncbi.nlm.nih.gov/pmc/articles/PMC6484449/
https://ncbi.nlm.nih.gov/pubmed/29106808
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1080/17538157.2017.1364251
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