An overview of the Cure SMA membership database: Highlights of key demographic and clinical characteristics of SMA members

BACKGROUND: The Cure SMA database is one of the largest patient reported databases for people affected with SMA. OBJECTIVE: The purpose of this study was to examine a subset of affected SMA persons with types I, II, and III from a patient reported database. METHODS: Individuals with SMA were selecte...

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Publicat a:J Neuromuscul Dis
Autors principals: Belter, Lisa, Cook, Suzanne F., Crawford, Thomas O., Jarecki, Jill, Jones, Cynthia C., Kissel, John T., Schroth, Mary, Hobby, Kenneth
Format: Artigo
Idioma:Inglês
Publicat: IOS Press 2018
Matèries:
Research Report
Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC6004903/
https://ncbi.nlm.nih.gov/pubmed/29614694
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.3233/JND-170292
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