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An Internet support group for parents of children with neurofibromatosis type 1: a qualitative analysis
Parents of children with neurofibromatosis type 1 (NF1), a rare genetic condition, are at risk for emotional distress. While they may benefit from support groups, they may find it difficult to access support. We conducted an 8-week Internet support group (ISG) with 33 parents (29 mothers, 4 fathers)...
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| Publicado en: | J Community Genet |
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| Autores principales: | , , , , , , |
| Formato: | Artigo |
| Lenguaje: | Inglês |
| Publicado: |
Springer Berlin Heidelberg
2018
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| Materias: | |
| Acceso en línea: | https://ncbi.nlm.nih.gov/pmc/articles/PMC6002296/ https://ncbi.nlm.nih.gov/pubmed/29500624 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s12687-018-0360-x |
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