An Internet support group for parents of children with neurofibromatosis type 1: a qualitative analysis

Parents of children with neurofibromatosis type 1 (NF1), a rare genetic condition, are at risk for emotional distress. While they may benefit from support groups, they may find it difficult to access support. We conducted an 8-week Internet support group (ISG) with 33 parents (29 mothers, 4 fathers)...

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Dades bibliogràfiques
Publicat a:J Community Genet
Autors principals: Martin, Staci, Struemph, Kari L., Poblete, Alyssa, Toledo-Tamula, Mary Anne, Lockridge, Robin, Roderick, Marie Claire, Wolters, Pamela
Format: Artigo
Idioma:Inglês
Publicat: Springer Berlin Heidelberg 2018
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Original Article
Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC6002296/
https://ncbi.nlm.nih.gov/pubmed/29500624
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s12687-018-0360-x
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