An Internet support group for parents of children with neurofibromatosis type 1: a qualitative analysis

Parents of children with neurofibromatosis type 1 (NF1), a rare genetic condition, are at risk for emotional distress. While they may benefit from support groups, they may find it difficult to access support. We conducted an 8-week Internet support group (ISG) with 33 parents (29 mothers, 4 fathers)...

Deskribapen osoa

Gorde:
Xehetasun bibliografikoak
Argitaratua izan da:J Community Genet
Egile Nagusiak: Martin, Staci, Struemph, Kari L., Poblete, Alyssa, Toledo-Tamula, Mary Anne, Lockridge, Robin, Roderick, Marie Claire, Wolters, Pamela
Formatua: Artigo
Hizkuntza:Inglês
Argitaratua: Springer Berlin Heidelberg 2018
Gaiak:
Original Article
Sarrera elektronikoa:https://ncbi.nlm.nih.gov/pmc/articles/PMC6002296/
https://ncbi.nlm.nih.gov/pubmed/29500624
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s12687-018-0360-x
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