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Patient reported outcome measures in rare diseases: a narrative review
BACKGROUND: Rare diseases can lead to a significant reduction in quality of life for patients and their families. Ensuring the patients voice is central to clinical decision making is key to delivering, evaluating and understanding the efficacy of therapeutic interventions. Patient reported outcome...
Guardat en:
| Publicat a: | Orphanet J Rare Dis |
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| Autors principals: | , , , , , , , |
| Format: | Artigo |
| Idioma: | Inglês |
| Publicat: |
BioMed Central
2018
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| Matèries: | |
| Accés en línia: | https://ncbi.nlm.nih.gov/pmc/articles/PMC5914068/ https://ncbi.nlm.nih.gov/pubmed/29688860 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-018-0810-x |
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