Patient and clinician opinions of patient reported outcome measures (PROMs) in the management of patients with rare diseases: a qualitative study

BACKGROUND: Rare diseases may be life-threatening or chronically debilitating conditions. Patient care needs are often complex and challenging to coordinate and deliver effectively. Rare diseases and their clinical management may therefore substantially impact on patients’ health-related quality of...

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Detalhes bibliográficos
Publicado no:Health Qual Life Outcomes
Principais autores: Aiyegbusi, Olalekan Lee, Isa, Fatima, Kyte, Derek, Pankhurst, Tanya, Kerecuk, Larissa, Ferguson, James, Lipkin, Graham, Calvert, Melanie
Formato: Artigo
Idioma:Inglês
Publicado em: BioMed Central 2020
Assuntos:
Research
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC7288678/
https://ncbi.nlm.nih.gov/pubmed/32522194
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s12955-020-01438-5
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