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Patient reported outcome measures in rare diseases: a narrative review
BACKGROUND: Rare diseases can lead to a significant reduction in quality of life for patients and their families. Ensuring the patients voice is central to clinical decision making is key to delivering, evaluating and understanding the efficacy of therapeutic interventions. Patient reported outcome...
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| Publicado no: | Orphanet J Rare Dis |
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| Main Authors: | , , , , , , , |
| Formato: | Artigo |
| Idioma: | Inglês |
| Publicado em: |
BioMed Central
2018
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| Assuntos: | |
| Acesso em linha: | https://ncbi.nlm.nih.gov/pmc/articles/PMC5914068/ https://ncbi.nlm.nih.gov/pubmed/29688860 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-018-0810-x |
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