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An Assessment of a Shortened Consent Form for the Storage and Research Use of Residual Newborn Screening Blood Spots

As state newborn screening programs develop approaches to parental permission for the storage and use of residual dried newborn screening samples, it is important to understand how the public comprehends the consent elements. Focus groups in Utah, California, and Michigan (n = 7 groups, 69 participa...

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Опубликовано в: :J Empir Res Hum Res Ethics
Главные авторы: Rothwell, Erin, Goldenberg, Aaron, Johnson, Erin, Riches, Naomi, Tarini, Beth, Botkin, Jeffrey R.
Формат: Artigo
Язык:Inglês
Опубликовано: 2017
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Online-ссылка:https://ncbi.nlm.nih.gov/pmc/articles/PMC5826543/
https://ncbi.nlm.nih.gov/pubmed/29073807
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1177/1556264617736199
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