Concerns of Newborn Blood Screening Advisory Committee Members Regarding Storage and Use of Residual Newborn Screening Blood Spots

Objectives. We assessed attitudes and opinions of members of newborn blood screening (NBS) advisory committees regarding the storage and secondary research use of residual specimens from NBS. Methods. We conducted focus groups in 2008 and 2009 with NBS advisory committees (4 focus groups; n = 39 par...

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Bibliografski detalji
Glavni autori: Rothwell, Erin W., Anderson, Rebecca A., Burbank, Matthew J., Goldenberg, Aaron J., Lewis, Michelle Huckaby, Stark, Louisa A., Wong, Bob, Botkin, Jeffrey R.
Format: Artigo
Jezik:Inglês
Izdano: American Public Health Association 2011
Teme:
Research and Practice
Online pristup:https://ncbi.nlm.nih.gov/pmc/articles/PMC3222413/
https://ncbi.nlm.nih.gov/pubmed/21330580
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.2105/AJPH.2010.200485
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