Concerns of Newborn Blood Screening Advisory Committee Members Regarding Storage and Use of Residual Newborn Screening Blood Spots

Objectives. We assessed attitudes and opinions of members of newborn blood screening (NBS) advisory committees regarding the storage and secondary research use of residual specimens from NBS. Methods. We conducted focus groups in 2008 and 2009 with NBS advisory committees (4 focus groups; n = 39 par...

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Hlavní autoři: Rothwell, Erin W., Anderson, Rebecca A., Burbank, Matthew J., Goldenberg, Aaron J., Lewis, Michelle Huckaby, Stark, Louisa A., Wong, Bob, Botkin, Jeffrey R.
Médium: Artigo
Jazyk:Inglês
Vydáno: American Public Health Association 2011
Témata:
Research and Practice
On-line přístup:https://ncbi.nlm.nih.gov/pmc/articles/PMC3222413/
https://ncbi.nlm.nih.gov/pubmed/21330580
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.2105/AJPH.2010.200485
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