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“Matching” Consent to Purpose: The Example of the Matchmaker Exchange
The Matchmaker Exchange (MME) connects rare disease clinicians and researchers to facilitate the sharing of data from undiagnosed patients for the purpose of novel gene discovery. Such sharing raises the odds that two or more similar patients with candidate genes in common may be found, thereby allo...
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| Publicado en: | Hum Mutat |
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| Autores principales: | , , , , , , , , |
| Formato: | Artigo |
| Lenguaje: | Inglês |
| Publicado: |
2017
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| Materias: | |
| Acceso en línea: | https://ncbi.nlm.nih.gov/pmc/articles/PMC5669800/ https://ncbi.nlm.nih.gov/pubmed/28699299 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1002/humu.23278 |
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