Discordance in selected designee for return of genomic findings in the event of participant death and estate executor

BACKGROUND: Legal and ethical questions arise regarding disseminating genetic research results to family members in the event of a research participant's death; failure to return or return to legal next of kin or estate executor may not reflect participant desires. We sought to determine partic...

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Bibliographische Detailangaben
Veröffentlicht in:Mol Genet Genomic Med
Hauptverfasser: Goodman, Jessie L., Amendola, Laura M., Horike‐Pyne, Martha, Trinidad, Susan B., Fullerton, Stephanie M., Burke, Wylie, Jarvik, Gail P.
Format: Artigo
Sprache:Inglês
Veröffentlicht: John Wiley and Sons Inc. 2017
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Original Articles
Online Zugang:https://ncbi.nlm.nih.gov/pmc/articles/PMC5370224/
https://ncbi.nlm.nih.gov/pubmed/28361104
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1002/mgg3.274
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