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Biobank participant support of newborn screening for disorders with variable treatment and intervention options
We aimed to better understand biobank participant opinions of the benefits of newborn screening (NBS) for certain disorder types and how terminology used in NBS discourse might impact stakeholder opinion. We conducted a between-subjects randomized survey of 5840 members of the Northwestern Universit...
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| Publicado no: | J Community Genet |
|---|---|
| Main Authors: | , , , , , |
| Formato: | Artigo |
| Idioma: | Inglês |
| Publicado em: |
Springer Berlin Heidelberg
2016
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| Assuntos: | |
| Acesso em linha: | https://ncbi.nlm.nih.gov/pmc/articles/PMC5138165/ https://ncbi.nlm.nih.gov/pubmed/27586542 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s12687-016-0279-z |
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