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Biobank participant support of newborn screening for disorders with variable treatment and intervention options

We aimed to better understand biobank participant opinions of the benefits of newborn screening (NBS) for certain disorder types and how terminology used in NBS discourse might impact stakeholder opinion. We conducted a between-subjects randomized survey of 5840 members of the Northwestern Universit...

Täydet tiedot

Tallennettuna:
Bibliografiset tiedot
Julkaisussa:J Community Genet
Päätekijät: Bunnell, Megan E., Tarini, Beth A., Petros, Michael, Goldenberg, Aaron J., Arjunan, Aishwarya, Wicklund, Catherine
Aineistotyyppi: Artigo
Kieli:Inglês
Julkaistu: Springer Berlin Heidelberg 2016
Aiheet:
Linkit:https://ncbi.nlm.nih.gov/pmc/articles/PMC5138165/
https://ncbi.nlm.nih.gov/pubmed/27586542
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s12687-016-0279-z
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