Primary Ciliary Dyskinesia: First Health-related Quality-of-Life Measures for Pediatric Patients

Rationale: Primary ciliary dyskinesia (PCD) is a rare disease. There are no available data on disease-specific pediatric patient–reported outcomes. Objectives: Our objective was to create developmentally appropriate, health-related quality-of-life questionnaires (QOL-PCD) for children (6–12 yr) and...

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Dades bibliogràfiques
Publicat a:Ann Am Thorac Soc
Autors principals: Dell, Sharon D., Leigh, Margaret W., Lucas, Jane S., Ferkol, Thomas W., Knowles, Michael R., Alpern, Adrianne, Behan, Laura, Morris, Anjana M., Hogg, Claire, DunnGalvin, Audrey, Quittner, Alexandra L.
Format: Artigo
Idioma:Inglês
Publicat: American Thoracic Society 2016
Matèries:
Original Research
Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC5122491/
https://ncbi.nlm.nih.gov/pubmed/27464304
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1513/AnnalsATS.201603-198OC
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