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The patient’s experience of primary ciliary dyskinesia: a systematic review

BACKGROUND: Primary ciliary dyskinesia (PCD) is a rare genetic disorder characterised by progressive sinopulmonary disease, with symptoms starting soon after birth. The aim of this study is to critically review, analyse, and synthesise the literature in order to understand the experiences of patient...

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Detalhes bibliográficos
Publicado no:Qual Life Res
Main Authors: Behan, Laura, Rubbo, Bruna, Lucas, Jane S., Dunn Galvin, Audrey
Formato: Artigo
Idioma:Inglês
Publicado em: Springer International Publishing 2017
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC5548843/
https://ncbi.nlm.nih.gov/pubmed/28361274
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s11136-017-1564-y
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