Development of Health-Related Quality of Life Instruments for Young Children With Disorders of Sex Development (DSD) and Their Parents

Por Alpern, Adrianne N., Gardner, Melissa, Kogan, Barry, Sandberg, David E., Quittner, Alexandra L.
Publicado no J Pediatr Psychol (2017)

CHALLENGES OF DSD: DIVERSE PERCEPTIONS ACROSS STAKEHOLDERS

Por Kogan, Barry A., Gardner, Melissa, Alpern, Adrianne N., Cohen, Laura M., Grimley, Mary Beth, Quittner, Alexandra L., Sandberg, David E.
Publicado em 2012

QOS-13 LANGUAGE PROCESSING IN MONOLINGUAL AND BILINGUAL CHILDREN DIAGNOSED WITH MEDULLOBLASTOMA

Por Mucci, Grace, DeLuco, Tara, Santacruz, Gabriella, Tucci, Lara C.K., Alpern, Adrianne, Pathare, Jody, Templeman, Tina, Gallagher, Cristian, Shen, Violet
Publicado no Neuro Oncol (2016)

A quality-of-life measure for adults with primary ciliary dyskinesia: QOL–PCD

Por Lucas, Jane S., Behan, Laura, Dunn Galvin, Audrey, Alpern, Adrianne, Morris, Anjana M., Carroll, Mary P., Knowles, Michael R., Leigh, Margaret W., Quittner, Alexandra L.
Publicado no Eur Respir J (2015)

Primary Ciliary Dyskinesia: First Health-related Quality-of-Life Measures for Pediatric Patients

Por Dell, Sharon D., Leigh, Margaret W., Lucas, Jane S., Ferkol, Thomas W., Knowles, Michael R., Alpern, Adrianne, Behan, Laura, Morris, Anjana M., Hogg, Claire, DunnGalvin, Audrey, Quittner, Alexandra L.
Publicado no Ann Am Thorac Soc (2016)