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Development of Health-Related Quality of Life Instruments for Young Children With Disorders of Sex Development (DSD) and Their Parents

Objective Research in disorders of sex development (DSD) is hindered by a lack of standardized measures sensitive to the experiences of affected children and families. We developed and evaluated parent proxy (children 2–6 years) and parent self-report (children ≤6 years) health-related quality of li...

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Detalles Bibliográficos
Publicado en:J Pediatr Psychol
Autores principales: Alpern, Adrianne N., Gardner, Melissa, Kogan, Barry, Sandberg, David E., Quittner, Alexandra L.
Formato: Artigo
Lenguaje:Inglês
Publicado: Oxford University Press 2017
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Acceso en línea:https://ncbi.nlm.nih.gov/pmc/articles/PMC5428996/
https://ncbi.nlm.nih.gov/pubmed/27026663
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1093/jpepsy/jsw022
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