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Development of Health-Related Quality of Life Instruments for Young Children With Disorders of Sex Development (DSD) and Their Parents

Objective Research in disorders of sex development (DSD) is hindered by a lack of standardized measures sensitive to the experiences of affected children and families. We developed and evaluated parent proxy (children 2–6 years) and parent self-report (children ≤6 years) health-related quality of li...

詳細記述

保存先:
書誌詳細
出版年:J Pediatr Psychol
主要な著者: Alpern, Adrianne N., Gardner, Melissa, Kogan, Barry, Sandberg, David E., Quittner, Alexandra L.
フォーマット: Artigo
言語:Inglês
出版事項: Oxford University Press 2017
主題:
オンライン・アクセス:https://ncbi.nlm.nih.gov/pmc/articles/PMC5428996/
https://ncbi.nlm.nih.gov/pubmed/27026663
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1093/jpepsy/jsw022
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