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The risk of re-identification versus the need to identify individuals in rare disease research
There is a growing concern in the ethics literature and among policy makers that de-identification or coding of personal data and biospecimens is not sufficient for protecting research subjects from privacy invasions and possible breaches of confidentiality due to the possibility of unauthorized re-...
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| Publicado no: | Eur J Hum Genet |
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| Main Authors: | , , , , , , , , , , |
| Formato: | Artigo |
| Idioma: | Inglês |
| Publicado em: |
Nature Publishing Group
2016
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| Assuntos: | |
| Acesso em linha: | https://ncbi.nlm.nih.gov/pmc/articles/PMC5110051/ https://ncbi.nlm.nih.gov/pubmed/27222291 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/ejhg.2016.52 |
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