The risk of re-identification versus the need to identify individuals in rare disease research

There is a growing concern in the ethics literature and among policy makers that de-identification or coding of personal data and biospecimens is not sufficient for protecting research subjects from privacy invasions and possible breaches of confidentiality due to the possibility of unauthorized re-...

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Udgivet i:Eur J Hum Genet
Main Authors: Hansson, Mats G, Lochmüller, Hanns, Riess, Olaf, Schaefer, Franz, Orth, Michael, Rubinstein, Yaffa, Molster, Caron, Dawkins, Hugh, Taruscio, Domenica, Posada, Manuel, Woods, Simon
Format: Artigo
Sprog:Inglês
Udgivet: Nature Publishing Group 2016
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Article
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC5110051/
https://ncbi.nlm.nih.gov/pubmed/27222291
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/ejhg.2016.52
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