EPIRARE survey on activities and needs of rare disease registries in the European Union

Antzeko izenburuak

• The EPIRARE proposal of a set of indicators and common data elements for the European platform for rare disease registration
  nork: Taruscio, Domenica, et al.
  Argitaratua: (2014)
• Characterization and classification of Rare Disease Registries by using exploratory data analyses
  nork: Coi, Alessio, et al.
  Argitaratua: (2014)
• European Project for Rare Diseases National Plans Development (EUROPLAN)
  nork: Taruscio, Domenica, et al.
  Argitaratua: (2010)
• The Italian National Rare Diseases Registry
  nork: Taruscio, Domenica, et al.
  Argitaratua: (2014)
• The Occurrence of 275 Rare Diseases and 47 Rare Disease Groups in Italy. Results from the National Registry of Rare Diseases
  nork: Taruscio, Domenica, et al.
  Argitaratua: (2018)