The RUDY study platform – a novel approach to patient driven research in rare musculoskeletal diseases

BACKGROUND: Research into rare diseases is becoming more common, with recognition of the significant diagnostic and therapeutic care gaps. Registries are considered a key research methodology to address rare diseases. This report describes the structure of the Rare UK Diseases Study (RUDY) platform...

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Détails bibliographiques
Publié dans:Orphanet J Rare Dis
Auteurs principaux: Javaid, M. K., Forestier-Zhang, L., Watts, L., Turner, A., Ponte, C., Teare, H., Gray, D., Gray, N., Popert, R., Hogg, J., Barrett, J., Pinedo-Villanueva, R., Cooper, C., Eastell, R., Bishop, N., Luqmani, R., Wordsworth, P., Kaye, J.
Format: Artigo
Langue:Inglês
Publié: BioMed Central 2016
Sujets:
Research
Accès en ligne:https://ncbi.nlm.nih.gov/pmc/articles/PMC5101709/
https://ncbi.nlm.nih.gov/pubmed/27825362
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-016-0528-6
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