Improving patient outcomes in fibrous dysplasia/McCune-Albright syndrome: an international multidisciplinary workshop to inform an international partnership

Por Boyce, A. M., Turner, A., Watts, L., Forestier-Zhang, L., Underhill, A., Pinedo-Villanueva, R., Monsell, F., Tessaris, D., Burren, C., Masi, L., Hamdy, N., Brandi, M. L., Chapurlat, R., Collins, M. T., Javaid, Muhammad Kassim
Publicado no Arch Osteoporos (2017)

The RUDY study platform – a novel approach to patient driven research in rare musculoskeletal diseases

Por Javaid, M. K., Forestier-Zhang, L., Watts, L., Turner, A., Ponte, C., Teare, H., Gray, D., Gray, N., Popert, R., Hogg, J., Barrett, J., Pinedo-Villanueva, R., Cooper, C., Eastell, R., Bishop, N., Luqmani, R., Wordsworth, P., Kaye, J.
Publicado no Orphanet J Rare Dis (2016)